Saturday, January 7, 2012

It Might Get Messy

At the Greater Baltimore Medical Center you don’t get a cancer doctor. You get a designated SWAT squad. Among MDs, I have a surgeon, a radiologist (since retired), an oncologist, and a dentist. At the next level, I have a PhD dietician and a Master’s level physical therapist. 


I went to see Dr. T, oncologist (and haematologist, but I haven’t needed that specialty), this week. On my way in to the examining room, I passed Dr. D in his office. Dr. D was on duty in the emergency room that Sunday morning I showed up dehydrated and anemic. He remembered me. That’s a skilled physician!


Dr. T is generally happy with my condition. My weight is stable on a diet of one enormous Carnation Instant Breakfast shake and three cans of liquid medical food a day. My teeth are good—dental hygiene is a huge concern in throat and tongue cancer because salivary glands are destroyed and damaged by radiation. Visible infections in my oral cavity are all gone. 


But that pain at the lower left side of my tongue—approximately where the tumor was—came back as soon as I closed out the Fluconazole—that’s the vaginal yeast infection stuff—prescription. Dr. T looked close, and went back to check the post-treatment imaging. There was absolutely no potential tumorous activity at that spot then, and there is no tumor material there now. No thrush, either. But, since the Fluconazole fixed the pain and now the pain’s back, she put me back on Fluconazole. We’ll have to see how it goes this time.


Speaking of salivary glands…we were speaking of those somewhere up there, weren’t we? Oh, there it is. Ok, speaking of salivary glands. Mine seem to have sorted themselves out within the past week or so. The thick ropey mucous forms in the throat from one kind of gland, a type that survives the radiation. The reason you mostly don’t have a problem with it is that it mixes with the thin mucous from the glands higher in the throat (and mouth) and the net texture is normal saliva. The past few days, some of my thin salivary glands seem to have started functioning. This is much more comfortable. And easier to work with. As in “at work”. A bunch of us share a very small space in our Eastport marina location, and there’s only one bathroom. It’s not really possible to politely clear a mucousy throat under such conditions. 


I took my first stab at a jog today. It’s warm enough outside so I didn’t feel like I was going hypothermic immediately. I managed about 300 meters jogging, and a few more walking. My body felt like…well, like it had spent the past year in bed. Which it pretty much has! But the exercise felt good. Hopefully I’ll be back to 5K a day soon. I’ll have to watch my weight, though. I’ve been stable at 194 (down from a peak of 276, I’ll have you know). I may need to increase my calorie intake. And, since I need to start getting substantive calories by mouth (beyond my thick shake), the timing is perfect. Scrambled eggs, here we come!


Thanks for stopping by, everyone. I hope everybody’s noticed that day length is increasing palpably (can day length be “palpable”?). Spring is just weeks away. The beach house is rented for July. I can not WAIT to park my not-so-rotund-as-before butt in the sand and watch the manta rays leap out of the surf! Special thanks this week to Ginger, Gail, and Sam S. for the nice notes. Happy New Year, everybody. With a little bit of luck (and/or Xanax) it’ll be a good one!

6 comments:

  1. Sounds like you're doing great! New year, new you! I was thinking soups might be a good try -- maybe pasta fagiole? I like the small white beans instead of cannellini. Also, Stonyfield Farms makes a great whole milk yogurt.

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  2. Yogurt, especially thick Greek style, works great. Past fagiole is a fabulous idea. I'll make a batch this weekend and see how I do...

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  3. Hey, get a stick blender and mash up the beans and veggies a little. Also, don't forget the dollop of cream cheese when serving, it'll cream it up a little.

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  4. will you be able to hit the fagiole with gobs of minced garlic? Are you able to ingest?

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  5. Did you ever think you would be worried about keeping your weight UP?? this is no way to diet! with many other cancer treatments that don't involve your ability to swallow, patients tolerate their meds with large doses of steroids...cancer sucks...it makes you sick and fat. And as a friend of mine advises,, get ourself some nice pajamas, and a very good wig if necessary. It's one thing to feel like shit, it's another to look like it and she wasn't going to let that happen. :)

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  6. Well, I didn't start out looking all that great, so the unfortunate cosmetic outcomes of my treatment may not be as noticeable. I gather that with time I'll be back working on keeping my weight down. For the Big Guy From the Taiga Now The Steamy Subtropics---if I can't ingest it as-is, I'm taking my sister's advice and stick-blending it until it screams.....

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